Hi. I was just wondering how people have gone about choosing the right osteoporosis treatment for themselves? Did you just go with the one the GP prescribed or did you look around at other options first?
Hi. I was guided by my rheumatologist at the time but that was before I was a member of ROS and knew much about the various different drugs available. Also there were no anabolic options 10 years ago when I started treatment except for teriparatide. I’m due a review soon and feel more empowered to have a discussion about the best treatment at this point in my life and the new anablic drugs (romosozumab and abaloparatide) rather then just accept what they suggest without question. Hope this helps.
I always ask for different GP, or consultant opinions if possible
Hi
Make sure you take your notes with you when you see any doctor of what you want to discuss including any side effects. You can find this on the ROS website. This will help you to be focused. I do that everytime I see any doctor. Take care and hope all goes well with the best treatment.
Good shout. I saw this in the recent ROS January newsletter and it’s really helpful. Not matter how mentally prepared I think I am I always get a bit flustered with the Doc due to time pressure so a physical check list is great.
Whatever I take it will scare me. I’m not used to medication, not even paracetamol, so the situation I’m in is alien to me. (I was only diagnosed 4 weeks ago)
I’m leaning toward yearly infusion so I don’t have to take tablets on a regular basis. My GP is useless. Has never bothered to contact me so I’m in contact with the hospital
Hi be your own advocate. Sometimes Radiologists comment on the DXA scan results. Mostly they tend to prescribe Allendronic Acid weekly. Depending on your DXA scan results you could request a referral to the hospital as GPs tend to have general information but specialist in the hospital will be more focused.
Above all, look at the Royal Osteoporosis Society website which gives a lot of information. I am a member and get emails and quarterly newsletters which are very informative.
Also most important is the bone impact and muscle strengthening exercises (ROS has 3 stages of these exercises). Exercises are important so set time aside to do them.
Remember to check your risks at home and outside. For me, I put light at home at night, no high heels and no long trailing dresses.
But with a bit of adjustments, life is great.
Take care.