When I was first diagnosed I was only offered Evenity by the nurse practitioner. I declined and said I wanted to think about it. She made me an appointment with the consultant so I had about three months to consider it.
I found Teriparatide on this website and it seemed the lesser of two evils. Fortunately the doctor agreed and I started two weeks ago. He said that it has been prescribed for some years so they know a lot more about it. BTW my T score (5.1 lumbar region) similar to your hip score.
I have Teraparatide TEVA and administration is a doddle. I had a nurse to show me what to do but I did it myself with no problem. I’ve had no side effects so far. The only thing we can do is try it and hope for the best. At least we can easily stop the treatment.
Off topic (sorry), but regarding the lady who has mentioned Good Boost upthread, I’ve been attending aqua sessions for six months and enjoy it. There is land based Good Boost too if water isn’t your thing.
Hello. Yes there are a lot of us worried about the jaw problem & although someone did post that it’s a 0.1 % risk in 100,000 that doesn’t ring true for me & I wondered if some people just don’t report that side effect? My fried is a dental nurse of 30 years & she sees a lot more than that percentage! Regarding the Teriparatide. My biggest worry is fainting! I have lowish blood pressure…last thing any of us want to do is fall! Thanks for letting me know that it is easy to use. I’m just starting this journey & I know I am going to have to do a bit of pushing here & there to get what I believe is best for me
The jaw issue was one of the things that concerned me about Evenity although I understand that it is extremely rare. From what I have read Teriparatide has fewer and less severe side effects.
I too have low blood pressure for my age. Doctor said to inject before bed to prevent dizziness. I inject after breakfast because I always put my feet up and have rest then.
Just to reassure you, I was extremely anxious from the beginning when the nurse offered Evenity. When I was given an appointment with the nurse it was awful. However, once I’d bitten the bullet so to speak I was a lot better and now I just crack on and it’s just part of life.
I wish you all the best and hope your treatment goes well. We are going to build strong new bone and that’s got to be good.
I have been on teriparacide injections for the last 11 months. No side effects so far. I do know about the side effects relating to the jaw. I was informed by my local hospital outpatient osteoporosis clinic that I will have to change my medication after 2 years.
Oh. I thought teraparatide didn’t effect the jaw? It’s the alendronic acid/ bisphosonates that do that. So don’t worry. I read that teraparatide can be used to cure people that have had jaw crumbling from the alendronics. Yes it does seem to be a fab medicine all round
How low is your blood pressure and is there any medical reason for it? Just asking because it could be something you might want to discuss with your doctor.
Sounds bizarre but for years I’ve put salt on my breakfast cereal. These days I have a few salted peanuts instead because they are a source of protein and calories/energy. I use the Teriparatide after breakfast so as I’ve had food and drink I don’t have the light headed feeling.
Might help if you take sufficient fluid before administering the Teriparatide.
I have been on Teriparatide forv6 months now. I inject before bed for that reason and also I get some mild nausea.
My problem now is it seems to be impacting my appetite. After 6 months ive lost a stone. My appetite just seems to switch off while I am eating, its very weird. I am eating less and less but I just cant face food sometimes. So far it hasn’t worried me as I needed to lose a bit but I am 5.8 and now weigh under 10 stone. So still at lower end of healthy but if I lose much more ill be underweight.
I want to complete the course as it is such a good treatment but am concerned about my appetite issues. I have no other side effects.
