Having read so many people are expected to wait for Evenity or other anabolic treatments until they have a fragility fracture is soo disheartening and counterproductive. Surely we should be calling out to treat people with high frax score BEFORE they fracture, as actually fracturing affects your whole life and outlook for the future.
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I have to agree. Since I had s spinal fracture six months ago, I am convinced that osteoporosis is medicine’s poor relation. Yet its impact on a large sector of the population can be profound as well as the impact on hospitals and care services through fractures and disability. I start to to wonder if this is because osteoporosis is largely a disease of older people, especially women.
With a DEXA hip score of -3.4 , spinal fracture and a strong family history of osteoporosis, I was refused Abaloparatide because my score was not -3.5. Yet the consultant who checked my x-ray said that I was likely to fracture another vertebra within month. I fought for several months and have just started on teriparatide, an old but effective anabolic drug.
Why is it such a battle to get respectful and rational care and treatment? I have felt deeply disappointed by the rheumatology department.
Let’s hope that teriparatide works!
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Because it costs money, so they off load as many as possible unfortunately. Always forgetting that there is a person at the end of this trying to live a normal life.
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And usually a disease of older age and mostly women!
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