I found out on Monday, following a T5 wedge fracture and a recent Dexa scan, that i have severe osteoporosis, with very high risk of fractures in both areas of the scan. I have to say this came as a bit of a shock. I am struggling to come to terms with that going forward. My husband is treating me with cotton wool care. Also, I am now waiting for the delivery of my first Romosozumab injections, and a nurse to show my husband how to administer them. This will then be monthly for a year, then followed by an annual infusion of another drug. I’m sure it will be fine but am feeling quite shaky over the whole thing (the news , the drugs, monthly delivery and administer of injections etc). It doesn’t help that its on the back of my husband having just finished radiotherapy. It just all feels a bit too much.
Hi. It’s only natural to feel overwhelmed, especially as you haven’t really had a chance to process your diagnosis before starting on your treatment and also have have the worry over your husband. I have completed the Romosozumab and can remember only too well the anxiety I felt leading up to starting it. I reached out to the community for support which was so helpful. I also made a video for the ROS showing how to administer the injections during the time I was on this treatment. Once I had finished this I went onto Zolendronic infusions. Again I was quite anxious about having this but again I found it so easy. I am now 8 months into the Zolendronic infusions and don’t have to think about treatments for a whole year. I have had really good results from being on these treatments and have become much more mobile, doing most things for myself now. I am slower than I was before I had all of the fractures but that’s fine I just take my time and do things with a bit more caution than before. The best bit is that I have not fractured since and I was fracturing frequently before with no trauma, which was very frightening to the point I was becoming too afraid to move just in case I fractured something else. This is almost impossible. If you go onto the ROS website there is a video on there showing how to do the Romosozumab injections which you might find helpful, or not. Wishing you all of very best on your treatment journey.
Thank you - that helps.
I too felt overwhelmed about the diagnosis just over 6 months ago, which came after two spinal fractures. It certainly felt life changing, and indeed it has been in that I am on weekly medication for the next 5 years, have to be careful about what I do and how I move, and I experience quite a bit of pain which I know is unlikely to ever change. My Mum had OP so I did know a bit about it but experiencing it yourself, and the effect it has on your life is very different. Also my Mum was much older when she was diagnosed. The difficulty I find is trying to keep moving enough if I am having a bad day, because if I don’t I feel so stiff and sore. Pace yourself, rest when you need to, do the exercises recommended by the ROS and hopefully you will feel less bleak about it soon. It sounds like you and your husband will looking after each other!
Thank you Jax. I’m feeling less overwhelmed now, but still waiting for my first lot of injections to arrive. I don’t know if my mum had osteoporosis as she was bedridden with MS for many years. But my sister tells me that my Grandma had it. So its in the genes.
Its good to hear someone else’s experience.
Hi Jac
I am waiting for my Romosozumab injections too. I have waited for 6 months and I never thought I would look forward to getting injections 
I first fractured my spine when I had a chest infection and I coughed quite hard.
I am anxious too but just want to get on with the treatment.
Look after yourself and good luck
Hi Mads
Wow, 6 months. I was told up to 8 weeks, so we will see. I hope yours arrives soon, so you can get on with your treatment. Good luck.
Hi Jac
My medication has arrived and I have a virtual appointment for tomorrow to show me how to administer the injections.
I hope you get your treatment soon.
Good Luck
Awesome. Hope it does what it should do for you and you get zero side effects. Good luck x
I found it quite upsetting when I was diagnosed with severe osteoporosis too. I did daily injections for nearly a year, I am going to resume that soon. Doing the injections is empowering, I feel I am taking control and taking steps to help myself.
Good luck.
Thanks. And all the best for your journey.