Hello, I will shortly be starting treatment with Teriparatide. Is anyone who suffers with Chronic Fatigue had, or is on any treatment for Osteoporosis? I am concerned about how I will cope with this treatment as coping with my current Fatigue can be quite difficult. Grateful for any advise re coping strategies. Thanks
Hi I suffer from ME and have done for approx 30 years. Over time I learnt how to pace myself and was able to hold down a very stressful full time job. Luckily the job was flexible enough to be able to manage my ME. What I did find was I became more sensitive to taking medication and developed food intolerances. Again over time I adapted and was able to manage. When I was first diagnosed with osteopororosis and then went on to have fractures this did affect the ME. It was difficult to tell at times whether it was the ME or the osteoporosis making me overly tired. I was not able to tolerate alondronic acid as this made all my joint swell. I managed for several years with any osteoporosis treatments before my osteoporosis became so severe and I was experiencing fractures with no falls that I realised I must act if I wanted to remain independant. I have had a course of Romozosumab and now having yearly zolendronic infusions. So far this does not appear to have made the ME any worse. I am no longer working, having retired so probably this does help. What I did find with the ME was that personal stress impacted more on me than work related stress. With this in mind I do anything I can to keep calm and relaxed such as guided meditation which also seems to help me with pain. I do a gentle online exercise class once a week aimed at help with bone health and core strength. The social aspect of this group helps me as much as the exercise part. Of course this is just my story and what has helped me and everyone is different. There have been times when medical professionals have got quite cross with me when I have refused certain treatments and refused opiates for pain relief. I know my body and over time have been proven to be right. So my advice is you know your body best, advocate for yourself and take time to research through the right sources such as ROS. I would avoid getting advice from osteoporosis groups such as facebook because they appear to be all doom and gloom and freak you out with a load of garbage. Wishing you all the best with your treatment and remember to be kind to yourself x