Diagnosed in 2017, it’s thought I have osteoporosis as a consequence of having coeliac disease.
My scores have remained constant since diagnosis, I’ve tried raising my prognosis and treatment with my GP, but it’s been fruitless.
Not seen by any consultants since diagnosis.
Hi Tom,
Thanks for sharing your experience. I was diagnosed in 2017 too.
Glad to hear your scores are constant - that’s better than declining after all! Have you been treated with bisphosphonates since your diagnosis as that would be the usual treatment and should further help maintain bone density? I’m sure you’re aware but vitamin D and calcium supplements are worth taking too - you can get them on prescription or just get supplements from any pharmacy.
Jim
Hi Jim,
Yes Im on risondrate sodium and the chewable calcium tablets. I’m happy(ish) that my scores are consistent, but question after 8 years, shouldn’t they be improving?
As I posted, I’ve tried talking to GPs and their response has been
Hi Tom
Interesting how Osteoporosis can be caused by another disease. I was diagnosed with Osteoporosis in 2022. No fracture, but was suffering with pain in my left thigh and hip. A concern as I had Bone Cancer many years ago and was concerned about a relapse.Consultant arranged an MRI Scan and a DXA Scan. Fortunately, no evidence of cancer and was referred to my GP for the DXA Scan results, which confirmed Osteoporosis and 2 spinal fractures. Most likely a long term effect of Chemotherapy many years ago. GP gave me no information and referred me to a local Fracture Liason Clinic and was prescribed Zolidronic Acid infusions.The ROS have been very helpful with advice on how to live with it.I had a consultation with an Osteo consultant 3 months ago who was very helpful and am due a 3rd infusion of Zolidronic Acid in April next year
I think a person’s route to osteoporosis, can decide the treatment they receive.
Broken bones invariably gets a patient to an appropriate specialist, whilst an incidental route, as in my case, just gets the GP route