Hello
After several years taking Alendronic Acid and exercising regularly, I was shocked to find my last scan showed a significant decrease in my bone density. My GP referred me to our hospital Osteoporosis Clinic and I have just started a new treatment, daily Terrosa injections, which have replaced the Alendronic Acid. I wondered if other members were taking this treatment and what their experience has been, and if they have any advice?
Thank you.
I’m very sorry to hear your bone density has decreased, and shocked that it has happened AFTER some years of alendronic acid. Have the doctors suggested why this could be? Is this normal? I have just presumed my density will be being helped by the alendronic acid, but it concerns me now… Have other people experienced this?
Hello Giselle
I’m sorry to have caused alarm in enquiring about Terrosa pen injections having previously taken Alendronic Acid. I didn’t ask the doctors about a reason for the decrease in my bone density as I was still rather shocked at the result of my DEXA scan.
However, I have been taking strong antibiotics for the past few years for an unrelated lung condition and this made me wonder whether there was a connection. I have discovered that prolonged use of strong antibiotics can significantly affect bone density. I must stress that my lung condition is rare so I doubt that others would have the same problem. I took Alendronic Acid without any problems before my lung condition was diagnosed a few years ago and hope this provides some reassurance.
Hello
I have stage 4 osteoporosis & have just finished a two year course of TERROSA injections . I have found them absolutely fantastic . I was so afraid that when the two years were up I would start to loose bone density quickly. Apparently you are okay for four to five months.
Tomorrow I have my first Denosumab injection then every six months for life.
I am hoping these are going to be as good as TERROSA . Good luck & I really hope they work for you. Best Wishes Sue
Thank you so much Sue, that is really reassuring. Best wishes with the next stage.
I have been on Alendronic Acid for a month since being diagnosed in December. It is worrying when you hear something negative about the medication you’re on, but it seems there are other factors at play here, that don’t relate to everyone.
I didn’t choose this medication, my GP told me that this was what I was going to be prescribed. The notes from the hospital had suggested it too.
I was advised by an assessor that I would probably be put on medication, and to do some research before I see my Dr so that I can make an informed decision, when I had a physio appointment last year for a broken bone in my foot. I did just that, but i didn’t get to talk to my GP face to face, just a brief phone call to say what I’ll be taking and how to take it.
It left me feeling really anxious, and i was dreading taking them. Luckily I have a great pharmacist who has checked up on me by phone over the last month, to make sure I had no side effects or concerns.
Hi ED Girl!
I’m sorry your bones have deteriorated, but let’s hope the daily teriparatide injections help. I’m on the daily injections too, and they are fine, eg no side effects that I’m aware of.
The only problem has been dealing with the pen in hospital. I bought a little cool box (meant for diabetics) to transport the pen in. But the nurses hadn’t got a clue what to do with it. They assumed i was quite dotty and that they had to administer it somehow. I had to be quite bossy (being a retired teacher helped) in order to take charge of the precious pen and make sure it was properly stored and brought to me to administer it myself.
I hope you don’t have to spend time in hospital but be prepared to be bossy! Good wishes.