It interesting to know this. I am told my fracture risk is high. My total spine t score is -3.2
I was nervous too about having the romosozumab, and have just had my 4th dose. I have found the whole process easy and trouble free, and I have had no side effects. I had an excellant online tutorial with a nurse who guided through my first dose, and put all my anxiety to rest. I envy you being able to walk 5-8k every day as after 4 spinal fractures, I find walking difficult after about 1.5k. All the best, and I hope things work out for you.
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I am sorry to hear that you’ve had 4 fractures . I do really hope after your medication the result would be stronger bones and that you can walk much longer.
Best of luck.
Hi Bajo
I was diagnosed with severe osteoporosis in March and have had eight spinal fractures, all have which now healed thankfully albeit I’m still in considerable discomfort probably due to spinal changes and my muscles adapting.
I’ve been on Teraparatide for five months, I’m happy to say that the only side effect has been weight gain by about half a stone. Although it’s frustrating it’s far better than the alternative as I was regularly fracturing vertabrae. I’ve not had a fracture since June which I’m delighted about and genetics feel much stronger.
Please don’t be afraid of taking it as it really has been a god send for me. I’m now seeing a physio privately and slowly strengthening my back so I can hopefully get my life back on track.
Wishing you all the best.
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Hi Grandy1952
I so very much appreciate your feedback. I am seeing a rhomothologist on Friday to discuss maybe a change of Triparatide to Romosozumab before starting which was arranged for 12th October. That’s because injecting everyday is very daunting . Your message is a great help. . I heard some people have lost a stone in weight and I was concerned as I am very slim so losing more weight was really worrying to me. I actually don’t mind putting on some weight. How do you feel about injecting every day? Is it painful?
Thanks
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Has anyone here have heard or is taking Abalopratide. I was under impression that I was going to start on Triparatide but instead they have offered Abaloparatide .
@Bajo I was diagnosed in March of this year. My T scores are bad, particularly lumbar spine. One wedge fracture. The nurse only offered Evenity but I refused as I wanted to think about it. She referred me to the consultant so I had three months to do some research.
Came across Teriparatide on this website and talked it through with the helpline nurse. The doctor agreed to prescribe it and said that it has been approved for some years therefore more is known about it. Possible recorded side effects are not as severe as Evenity.
I commenced treatment in August of this year. No problems so far. The daily injection is just routine now and is very easy to administer. It is a subcutaneous injection which means that it goes just under the skin. The needle is therefore tiny and very fine. If you accidentally pricked yourself with it you wouldn’t feel it much. It gives me a sense of control over my bone health and that I am making a positive impact on them.
Like you, I didn’t want to go on any medicine and was anxious and conflicted but the information on here about the decision making process helped and now I am glad that I chose to proceed with Teriparatide.
As others have said, Teriparatide is said to be particularly useful for the spine and low t scores. In some cases it can ease bone pain (which I have).
@SteelCity Thanks for your reply and feedback back. It is very reassuring knowing that every day injection is not that bad. I have been told my medication is Eladynod (Abaloparatide) apparently has been out only out 1year but Triparatide has been around for 20 years. So I am very concerned and feel I am being used as a guinea pig. Hence I am very worried in taking it.
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I have heard of that but only know that like Teriparatide it is an anabolic medication. I would want to know why the doctor chose that. Could you telephone the helpline to discuss? It’s important to have confidence in your treatment.
If you are unhappy with the choice you have time to get back to the doctor and ask for Teriparatide. I had to wait two months before the medication was delivered. Don’t know if it was due to administration at the hospital end or the supplying company.
I started Romosozumab on Wednesday, I too can’t tolerate any medication that has to hit the stomach.
I was very apprehensive about taking it but so far am ok. It made me feel really sleepy by late afternoon so went to bed early. I was fine in the morning but later felt a bit tired but not like the previous day.
All I can say is if you need it then give it a go, don’t just read the bad reviews and stay positive.
Good luck.
I’ve just started Romosozumab which I have to have for 12 months then having the infusion for 6 years which seems forever!
Thank you . 
I am trying, although I find it difficult. 
good luck with you treatment.
Hello Jack 91 thanks for your feedback. Much appreciated. I am told by Rhomotologist that as I am not a frigility case I won’t qualify for Romozozumab. I was also told Abolaparatied is best option for me as I have high fracture possibility in my hip and spine, Abaloparatide works on both . Hence he recommended it. I must say I am confused and looks like I can’t change the meds . Also I was convinced that Abaloparatied is the best course of action. I am starting on Aboloparatied but very apprehensive 
I did have mild side effects with Teriparatide, such as headache and some mild bone/joint pain for the first couple of weeks, but that soon settled down. After three months, am happy with the injections which have become a normal part of my nightly routine.
Hi Bajo,
Reading your post is like reading a post I woukd have updated. I was preacribed Romozozumad in August and as yet the first 3 months injections are still sat in my fridge.
I have been diagnosed with severe osteoporosis, after a non traumatic pelvic fracture last November. I have been on calcium rablets and alendronic acid since then. I really hate taking any medication and just have a sixth sense, little voice in my head stopping me taking the injections,. I am now back to full fitness 12 months down the line and just don’t want to upset how far I’ve come … I have returned to my daily spinning bike and just gone back to the gym, its all cardio work and with a low blood pressure and very low resting heart rate (38) my concerns are all based on Heart attack / stroke potential ..
I was told the reason for Abaloparatied instead of triparatide is because Abaloparatied works on hip and spine where triparatide works mostly on spine. I am not sure if this is correct. Any one here has any knowledge about Abalopratide or already on this meds ?
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@Zoeb thanks for your feedback. I understand how you feel, and well done to get yourself back to doing spinning classes. I used to do spinning but currently not as fit as I used to be. My dexa scan shows t-score is very bad, in my hip and former neck is -3.4 which and my spine -3.2
I’ve been prescribed Abaloparatide everyday injection, waiting for delivery. Very worried 
as I don’t like taking medication at all, So not sure how i am going to inject myself everyday, but I am told if not I have a big chance of hip fracture. I am going to the gym 5 times a week. Doing weights and walking on treadmills, I hope taking the meds is not going to interfere with my routine. regards to your fear of heart attack / stroke . I would recommend calling and talking to a nurse on this site, They are very knowledgeable and helpful.
Best wishes
Hi everyone,
We just wanted to drop in to warmly welcome new members, and thank everyone for sharing your experiences and support here As this thoughtful conversation shows, considering treatment options and starting a new medicine can understandably bring up lots of questions and worries. It’s really important to feel informed when considering any next steps. So, for anyone reading along, we wanted to highlight our information about teriparatide, romosozumab and abaloparatide, alongside our information about finding the right osteoporosis treatment, in case these feel helpful.
We also have our free service, BoneMed Online, which provides tailored information about your osteoporosis medicine.
Please do keep in touch here and share how you’re getting on. We really hope you’ll continue to find support and understanding
Wishing you all the very best,
Lulu
ROS Moderator
Yeah starting to get more worried about my bones to be honest after reading alot of comments My dexa scan results showed hips -3.4 and spine -5.1 … i had no idea how bad this was … no one else has mentioned a result that low. Doesnt help being very clumsy. Ive always taken my fitness for granted and always been superfit up to the fracture last year … i now feel realky consious just moving … worried my bones are goibg to snap
@Zoeb I am so sorry to hear that you have a low T-score. I feel the same about my bones, worried of my movement, since my fracture that I only found out 4 months ago, Even though i had the fall with heavy impact in March. I never take any medication but hearing what bone / osteoporosis specialist told me I decided to go for it. . If you have been offered and already have the meds but your fear is heart attack/ stroke, have a check up and once you know all is well, than maybe you would feel more confident to take the meds. I too am so worried about side effects but have had all the check ups . I have my delivery next week and starting the injections first week on November. . Nervous but at my age I need to make sure my bones are in good health.