Hi. Very nervous about any medication but the osteoporosis in my hip has gone down to -5.4 at 62 I am beyond distressed ! Anyone taking the teriparacides at all & what sort of side effects have you had? On reading about these it looks like they have less harsh side effects than the infustions. The main one i was worried about was the jaw detirioration which is not listed as a side effect for the teriparacides? Any advice good or bad would be very much appreciated, thank you
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Hi, I’ve been doing the Teriparatide injections for just over a month. During the first 10 days, I got lots of headaches but nothing since. I too was very wary but having been told I have severe Osteoporosis (I have 2 small fractures in my spine and have no idea how I got them!). The injections are every day fir 2 years, self administered. I was worried about it but they are easy to do. Apparently, I am supposed to have an Annual Infusion for 3yrs after the injections. Now that I am really worried about because of the side effects. I think I will cross that bridge as and when! Easy exercise - walking and not overdoing gardening are good for you but nothing too strenuous was the advice given to me. Good luck to you 
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Thankyou for your advice. I walk a lot and do minimal gardening. I too am really worried about the infusions!! Like you it’s all about the side effects. Now I am hoping for you & me both that they have come up with a better med/plan in two years time!? They may even decide safe to use for more than 2 years by then? In the meantime…any dental work that needs doing, we need to do now , just in case I think 
take care 
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I have been taking teriparatide for over a year and never had any side effects (but I haven’t had side effects from other osteoporosis drugs either). My understanding of osteonecrosis of the jaw is that the risk is very small, and certainly smaller than the risk of serious consequences of osteoporosis if left untreated.
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Thankyou, yes in hindsite - if I had taken the drugs ten years ago - but my friend a dental nurse & put me off, together with a neighbour who lost a few teeth before refusing any more treatment. I can’t get a doc call until the 9th about being referred to a consultant. In the meantime I feel like I should wrap myself in bubble wrap & not move 
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Hello
Here are a few images by a consultant rheumatologist on Instagram explaining the risk of osteonecrosis if the jaw. I hope you find them reassuring.
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Thankyou for that info. Okay so 0.1%. My Aunty was a 0.1% on the femoral fracture. Difficult when you know someone with these side effects But yes that is a bit of reasurrance on the stats, cheers
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Thanks again for the advice, good to know the side effects didn’t last too long. I am quite nervous as I have M.E. and react to new stuff quite easily. I have 6 fractures at the latest count. And thinking we’ll see in two year’s time, there might be a newer better medication by then…In the meantime good luck to us all 
Yes indeed there might well be. I also have bad reactions to meds BUT the daily injections seem to have very little mild side effects. The only one I am worried about is blood pressure dropping upon administration as my blood pressure already on the low side.
Have they checked you for parathyroid hormone? If not, as for that first, along with Vit D, Magnesium and Calcium.
Hi there
I have been taking teriparatide since May and have had no side effects.
I have read that teriparatide is better for the spine than the hips so perhaps another type of drug might be better for you. You need to get advice from a rheumatologist. I believe the ROS nurses are excellent. I am sure they can help you.
Good luck. It is a scary time.
No not tested for that
Oh that’s interesting. Yes good to know it’s more beneficial for spine. thanks.
Hi Mermaid. It really is quite important that you are tested for hyperparathyroidism. I don’t understand why it isn’t routine. Ask your doc to refer you for the blood test before you take any bisphosphonates or anabolics.
Oh okay will do thanks for the advice
I am starting teriparatide soon I am wary about the injection but good to hear from you its not that bad. What exercisesdid you do my physiotherapy giving group exercises like circuit training which some of the exercises I can’t do I am the only one with severe osteoporosis I have 5 spinal compression fractures i am so scared of doing the exercises I ask to gave one to one but he suggested that I beed building strength exercises he is not listening to me so I stopped going any suggestions I appreciate it.
I have some very light exercises to do at home with instructions to do what I can. They are mainly stretching exercises. Plus I walk and I do all the garden - but no heavy lifting! I could do with doing more as I really need to lose weight! If you look on this site, they do give you exercising tips. Good luck!
Hi Player,
I have 6 compression fractures and like you I am very scared of hurting myself further with exercise. My physio has shown me some very gentle exercise you can do lying down to build up core strength, or sat on an exercise ball, with 1kg weights to start with, lifting my arms in front and sideways while engaging my core, and that helps me.But we are all different and that might not be ok for you.
Otherwise I have found exercise on Youtube , look for “the bone builder system” but I’m sure there are others, you need to decide which one is good for you.
Also Is there a Good Boost programme in your area?
I am starting a therapeutic pool exercise next week at my local pool and got a referral for this, I tried the aquacise elsewhere and that set me back. I had a taster last week and I was pleased with it. I would say only do what you can do, and I don’t think circuit training is right either. Good luck
Re the Ai good boost programme I have just seen that you can try their programme at home free for 2 weeks by joining a virtual class from home . So I will try that
there is some advice online that says a trick to avoid feeling faint is to inject at bedtime. But I can’t find the link sorry or my paperwork right now 
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